Reid, Colleen J. | DOOR - DOuglas Open Repository

Photograph

Person Preferred Name

Colleen Reid _none

Position

Faculty member

Field of Activity

health inequities

aging and dementia

mental health

social determinants of health leisure and recreation

community-based participatory research

arts based research

feminist theory

Website

https://imaginationnetwork.org/

Email/Contact

reidc@douglascollege.ca

Department

Therapeutic Recreation

Applied Community Studies

Affiliation

Therapeutic Recreation

Status

current

Affiliation Date

2009

PhD (University of British Columbia) Interdisciplinary Studies in Health Sciences
MA (University of British Columbia) Human Kinetics in Socio-cultural Studies
B.PHE (Queen's University) Physical and Health Education
BA (Queen's University) Psychology

Douglas College Faculty member since 2009.

Colleen is Faculty in the Department of Therapeutic Recreation and Coordinator of the Research Innovation Office at Douglas College. She also holds Adjunct Professor positions in the Public Policy program at Simon Fraser University, in Rehabilitation Sciences at The University of British Columbia, and in the Faculty of Health Professions at Dalhousie University. As an interdisciplinary graduate student at UBC, a health sciences postdoctoral researcher at SFU, and faculty at Douglas she has been involved in community-based participatory research (CBPR) projects for over 25 years. Colleen uses CBPR approaches, including community-based research, action research, participatory action research, practitioner research, applied research, and feminist participatory action research, to study and promote health in the contexts of oppression, suffering, and stigma for marginalized groups. She has conducted research with women on low-income, women living in diverse contexts struggling with employability, practitioners striving for recognition in their workplace and the health care system, individuals with lived experience of mental illness and individuals with dementia. Currently, she is co-lead on the Vancouver Foundation-funded CBPR project “Raising the Curtain on the Lived Experience of Dementia.” In Colleen's research and teaching, she focuses on critical social research methods, community development, the determinants of health, and leisure and recreation. She brings a strong commitment to social justice and participatory and inclusive approaches to her work.

Related Works

From "The Tragic Self" to "The Empowered Self": How leisure spaces can foster narrative agency for people with lived experience of dementia

Digital Document

Harmful cultural narratives equate dementia with a loss of self, citizenship, narrative agency. Although leisure activities are widespread in dementia programs, less attention is paid to leisure’s social justice orientation and potential to resist dominant narratives. Raising the Curtain on the Lived Experiences of Dementia was a five-year community-based participatory research study, guided by the values and practices of social citizenship (Bartlett & O’Connor, 2007, 2010). The project explored how individuals living with dementia made sense of their lived experiences individually and collectively. Analysis of participants’ accounts of their dementia revealed the tragic self and the empowered self as two over-arching themes, showing how participants’ both adopted and resisted dominant dementia narratives. Insights suggest leisure spaces have potential to foster the narrative agency of individuals living with dementia to enable expression of the fullness of their experiences including powerlessness and agency; uncertainty and certainty; dread and joy; conformity and resistance.

Virtual collaborative creative engagement in a pandemic world: Creative connection for older adults with lived experience of dementia

Digital Document

Introduction: Older adults were disproportionately affected by COVID-19, and isolation and loneliness became key risk factors for mental illness and decreased quality of life. Older adults with lived experience of dementia and their care partners experienced isolation, loneliness, anxiety and depression, already heightened due to social stigma. Reduced access to resources was a notable problem. Objective: This Canadian qualitative study investigates the Raising the Curtain on the Lived Experience of Dementia (RTC) Project's virtual turn in program delivery during the pandemic, asking “How did virtual collaborative creative engagement (CCE) impact well-being for people living with dementia and their care partners?”; and “What are key elements of RTC's unique virtual CCE approach?”Methods: The study employs reflexive thematic analysis to analyse interviews and focus groups with the project's artist facilitators, researchers, peer collaborators living with dementia, and their care partners. Findings: Themes describe key elements of RTC's unique approach to virtual CCE and include: “Adjusting Expectations and Adapting to Technology”; “Re-imagining Creative Engagement in Virtual Space”; “Sustaining Reciprocal Caring, Learning, and Support”; “Disrupting Stigma and Welcoming a Wider Audience”; and “Supporting Well-being through Empowerment, Community, and Creativity.” Discussion: Findings offer new perspectives on how virtual CCE not only has the potential to decrease loneliness and isolation and associated mental health risks for older adults living with dementia and their care partners, but also can work to disrupt stigmatizing representations of dementia, promote inclusion, and enhance citizenship.

Digital Document

The lived experience of dementia includes loss of identity due to the negative and pessimistic social narratives that are stigmatizing and socially isolating. In the community-based participatory research (CBPR) project Raising the Curtain on the Lived Experiences of Dementia, eleven individuals living with dementia participated as ‘peer collaborators’ in weekly co-creative workshops over two years. The purpose of this study was to investigate how peer collaborators described their involvement in Raising the Curtain in relation to their social participation and ability to effect social messages about dementia. Data gathered from the workshops, including transcripts (8) and one-on-one evaluation interviews (103), were used for analysis. Research findings revealed that the participants’ engagement as peer collaborators fostered their ability to enact resistance and social citizenship, including sharing lived experiences, combating the stigma of dementia, engendering inclusion and belonging, and promoting advocacy. Using CBPR to foster social citizenship suggests that meaningful and purposeful approaches to leisure are possible for individuals living with dementia.

Using arts-informed research approaches to explore the lived experiences of dementia

Video

DC Research Cafe presentations May 27, 2021: "Parables of care: Using comics to enhance the impact of dementia care practice and research" begins at 2 minutes, 5 seconds and "Raising the curtain on the lived experiences with dementia" begins at 16 minutes, 15 seconds.

Performing intersectionality: The mutuality of intersectional analysis and feminist participatory action health research

Digital Document

Summary: "Unequal access to health care is a problem in Canada much studied by journalists, academics, and policy makers. There is a growing recognition that existing theories on, and approaches to, health inequities are limited in their ability to capture how these inequities are produced through changing, co-constituted, and intersecting effects of multiple forms of oppression. Intersectionality offers itself as a research paradigm capturing the complexities of illness and care, and this volume brings together Canadian activists, community-based researchers, and scholars from a range of disciplines to apply interpretations of intersectionality to cases in Indigenous health, mental health, migration health, community health, and organizational governance. By addressing specific health issues including cardiovascular disease, dementia, post-traumatic stress disorder, diabetes, and violence, this book advances methodological applications of intersectionality in health research, policy, and practice. The authors ultimately reveal how multiple variables are influencing health and healing in Canada -- not simply race, class, and gender but also age, religion, geography and place, and the state of the economy. Most importantly, it demonstrates that health inequities cannot be understood or addressed without the interrogation of power and diverse social locations and structures that shape lives and experiences of health."--Provided by publisher.

Experience, research, social change: Critical methods

Digital Document

The third edition of "Experience Research Social Change is a 'how to' guide to research that also raises broader theoretical, methodological, and ethical questions ... The new edition includes a wider range of examples from diverse researchers and topics that are woven throughout the text, including transdisciplinary research, sex and gender analysis, intersectional analysis, Indigenous methodologies, community-based research, digital and online approaches to research, ethical responsibilities and commitments, and knowledge translation." -- From publisher description.

Confronting condescending ethics: How community-based research challenges traditional approaches to consent, confidentiality, and capacity

Digital Document

Community based research is conducted by, for, and with the participation of community members, and aims to ensure that knowledge contributes to making a concrete and constructive difference in the world (The Loka Institute 2002). Yet decisions about research ethics are often controlled outside the research community itself. In this analysis we grapple with the imposition of a community confidentiality clause and the implications it had for consent, confidentiality, and capacity in a province-wide community based research project. Through untangling these implications we provide recommendations for reframing how to think about research ethics and strategies for enabling research ethics’ processes to be more responsive to and respectful of community-based research.

Imagining inclusion: Uncovering the upstream determinants of mental health through photovoice

Digital Document

The purpose of this study was to better understand the lived experience of mental illness and factors that contribute to community inclusion, health, and wellbeing. Through the use of Photovoice, a community based participatory research (CBPR) methodology, participants visually represented factors that fostered inclusion. More significantly, however, participants used photography to capture major systemic and structural, or upstream, barriers to their active and meaningful participation in society, such as stigma and social exclusion. The participatory aspect of CBPR was itself empowering while it enabled participants to visually identify and explore upstream factors that profoundly shaped their lived experiences of mental illness. These findings point to the need for recreation therapists and other mental health professionals to expand from biomedical and behavioural interventions for individuals living with mental illness towards looking upstream to address the systemic and structural factors that impede individuals' full participation in their communities. [ABSTRACT FROM AUTHOR]

Therapeutic recreation's contributions to Canada's National Recreation framework

Digital Document

In 2015 a national framework for recreation in Canada was ratified. It outlines five priority goal areas to enhance individual and community well-being. Although the Framework is based on the idea of partnerships, there are limited examples of the contributions the field of therapeutic recreation (TR) can make to achieve these aims. The purpose of this paper is to explore how TR programs and services in Canada address the goals of the Framework for Recreation in Canada. Eighteen practitioners participated in the study from British Columbia (n = 9), Alberta (n = 7) and Nova Scotia (n = 2). A diversity of participants and settings were represented and a wide variety of TR practices, ranging from specific programs to entire service delivery contexts, were described. The results are framed in relation to the strong, moderate and weak alignments demonstrated in the descriptions provided, along with identifying the unique contributions of the TR profession to the Framework's goals. [ABSTRACT FROM AUTHOR]

The lived experience of recovery: The role of health work in addressing the social determinants of mental health

Digital Document

Recovery is a policy framework for mental health in Canada. Key challenges to the integration of recovery include a gap in knowledge about the work that people do to promote their health and well-being in the context of living with mental ill health. This study used Photovoice to explore the lived realities of people living with mental ill health and the impact of the social determinants on their recovery process. Findings from this study inform policy and practice on promoting health work as an important dimension of recovery and community inclusion. [ABSTRACT FROM AUTHOR]

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